As part of the standard of care for anyone that's diagnosed with Phelan McDermid Syndrome, Darus had his first brain MRI, under anesthesia, today at UCLA. I was anxious the entire time, but Darus was a real trooper and did great! The MRI was scheduled (not an emergency). We're hoping it will give us a baseline picture of his brain, if nothing else. His neurologist believes we will see methylation (due to his hypotonia) and there is a possibility of other abnormalities, including arachnoid cysts, which are typically benign, but common in the PMS community. Thanks to everyone for sharing this journey with us, your support is invaluable and much appreciated. #phelanmcdermidsyndrome #strongertogether
